New Lewy Body Dementia telephone support helpline

The Lewy Body Society have teamed up with Dementia UK, the charity which runs the dementia specialist Admiral Nurse Dementia Helpline, to provide a telephone helpline offering expert advice and information on Lewy Body Dementia.

Lewy body dementia is the second most common form of age-related neurodegenerative dementia. It is thought that around 130,000 people in the UK are living with this common, but little known, disease.

From 23rd July, the Admiral Nurse Dementia Helpline  is now available to those affected by Lewy Body Dementia, so that anyone ringing the Lewy Body Society will be directed through to the Admiral Nurse Dementia Helpline for advice and support. 

Open 7 days a week, the helpline is staffed by dementia specialist Admiral Nurses who will be able to answer questions and provide both practical and emotional support to anyone affected by Lewy Body Dementia - be they a relative, friend, carer or someone living with the condition themselves

Admiral Nurse Dementia Helpline

This might include information about treatment options; understanding the differences between Lewy body dementia and other forms of dementia, such as Alzheimer’s or vascular dementia; or strategies for looking after yourself as a carer of someone with dementia.

The helpline is open 9am to 9pm Monday to Friday and 9am to 5pm at weekends.

Simply ring the Admiral Nurse Dementia Helpline on 0800 888 6678 or send an email to helpline@dementiauk.org

By working together and sharing resources, the 2 charities (The Lewy Body Society and Dementia UK) hope to establish a valuable partnership.

Jacqueline Cannon, Chief Executive of the Lewy Body Society, said: “It is essential that people living with Lewy body dementia and their carers have access to expert advice and information, to help them understand the disease and how to live with it. Rather than duplicating and providing this service ourselves, we are delighted to partner with Dementia UK and signpost people affected by Lewy body dementia to the excellent Admiral Nurse Dementia Helpline.

“This allows us to focus our efforts on our core objectives of funding research into the diagnosis and treatment of Lewy body dementia, and raising awareness of the disease.”

Paul Edwards, Director of Clinical Services at Dementia UK, said: “This is a valuable partnership in which the Lewy Body Society is able to concentrate its efforts on research into this particular type of dementia, while Dementia UK’s Admiral Nurses can provide the compassionate and knowledgeable support and advice that families affected by dementia need.”

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