South London support for those living with Young Onset Dementia

The Early Onset Dementia Support Group at St George's University Hospital in South West London provides vital ongoing support for people who have received a diagnosis of early onset dementia (before the age of 65).

Dementia is a condition too often associated only with a much older age group, so the group was started in 2011 as a means of bringing younger people affected by dementia together to share their unique experiences and tackle the isolation many feel.

The group meets every 4 to 6 weeks and provides an opportunity for people with dementia and their supporters to talk about the challenges of living with dementia, share ideas and remain up to date on practical issues and scientific developments.

For those with more advanced dementia symptoms the group also provides support through techniques such as imagery and physical expression. 

The meetings have fostered a real sense of community and have proved a lifeline for many.

St George’s Young Onset Group has been a lifeline. Over the past four years it has been a source of professional, practical and emotional support. It has helped us to learn more about the nature of the illness and to get a better understanding of how to access such support as exists locally. Above all, through the opportunities to meet and share experiences with others, it has shown us that we are not alone in facing the challenges of living with dementia and its impact on both patients and their families. Over time it has become a hugely valuable network for mutual support. Sadly, it has made us realise that far from being rare there are many new cases of Young Onset Dementia being diagnosed and people joining the group who feel just as frightened and alone as we did. It is obvious that the need for the support group is stronger than ever.”
Jacquie and Tony
St George's Young Onset Dementia Support Group

Run by St George's Cognitive Neurology Service in partnership with Dementia Pathfinders, each meeting consists of a presentation or talk, a session for questions and activities, and time to socialise with other people who are living with early onset dementia, their families and supporters.

The support group is open to anyone with a diagnosis of early onset dementia, their friends and family.

The next meeting is to be held on Thursday 29th September 2016 in the John Parker Lecture Theatre at St George's Hospital.

If you would like further information or would be interested in attending, contact Barbara Stephens at Dementia Pathfinders by phoning 07786513351 or emailing barbara.stephens@dementiapathfinders.org

Useful links: 
http://dementiapathfinders.org/early-onset-dementia-support-group.html
https://www.stgeorgeshospitalcharity.org.uk/find-a-fund/young-onset-dementia-group

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  • 12 September 2016